<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	>

<channel>
	<title>Medicine and Society</title>
	<atom:link href="http://thefastertimes.com/medicineandsociety/feed/" rel="self" type="application/rss+xml" />
	<link>http://thefastertimes.com/medicineandsociety</link>
	<description>Just another The Faster Times weblog</description>
	<pubDate>Sat, 31 Oct 2009 01:16:00 +0000</pubDate>
	<generator>http://wordpress.org/?v=2.7</generator>
	<language>en</language>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
			<item>
		<title>The Ugliness of the Anti-Vaccine Movement</title>
		<link>http://thefastertimes.com/medicineandsociety/2009/10/30/the-anti-vaccine-movements-nasty-behavior/</link>
		<comments>http://thefastertimes.com/medicineandsociety/2009/10/30/the-anti-vaccine-movements-nasty-behavior/#comments</comments>
		<pubDate>Sat, 31 Oct 2009 00:29:25 +0000</pubDate>
		<dc:creator>Rahul K. Parikh, MD</dc:creator>
		
		<category><![CDATA[Uncategorized]]></category>

		<category><![CDATA[amy wallace]]></category>

		<category><![CDATA[Generation Rescue]]></category>

		<category><![CDATA[JB Handley]]></category>

		<category><![CDATA[medicine]]></category>

		<category><![CDATA[Paul Offit]]></category>

		<category><![CDATA[rahul k. parikh]]></category>

		<category><![CDATA[science]]></category>

		<category><![CDATA[vaccines]]></category>

		<category><![CDATA[wired magazine]]></category>

		<guid isPermaLink="false">http://thefastertimes.com/medicineandsociety/?p=58</guid>
		<description><![CDATA[Things often get very nasty for those who try to tell folks that vaccines have nothing to do with autism.  The latest target of that nastiness is writer Amy Wallace, who authored an outstanding article in this month&#8217;s Wired called &#8220;An Epidemic of Fear:  How Panicked Parents Skipping Shots Endangers Us All.&#8221;   In it, Wallace exposes vaccine rejectionists&#8217; junk science [...]]]></description>
			<content:encoded><![CDATA[<p style="text-align: justify;">Things often get very nasty for those who try to tell folks that vaccines have nothing to do with autism.  The latest target of that nastiness is writer Amy Wallace, who authored an outstanding article in this month&#8217;s <a href="http://www.wired.com/magazine/2009/10/ff_waronscience">Wired</a> called &#8220;An Epidemic of Fear:  How Panicked Parents Skipping Shots Endangers Us All.&#8221;   In it, Wallace exposes vaccine rejectionists&#8217; junk science and fear-mongering rhetoric.</p>
<p style="text-align: justify;">The typical response of the anti-vaccine camp when they hear this kind of sacrilege is to attack the messenger rather than the facts.  There is no proof, after all, that vaccines cause autism, and whatever proof anti-vaccinationists do cite is about as accurate as a report about a celebrity in the National Enquirer.</p>
<p style="text-align: justify;">So they smear people instead.   In the most benign cases, people who disagree with anti-vaccine folks get accused of having ties to pharmaceutical companies or the CDC (I have relationship to neither, by the way).  Others just shout expletives and call you names.  If you want examples of this, just check out anybody who disagrees with David Kirby&#8217;s anti-vaccine rants on the anti-scientific Living section of the Huffington Post.</p>
<p style="text-align: justify;">But the blowback against Wallace has been especially harsh.  In a recent interview about her piece on <a href="http://www.npr.org/blogs/thetwo-way/2009/10/amy_wallace_vaccine_wired.html">NPR</a>, she shared her experience.  The nicest insults were being called &#8220;stupid,&#8221;  &#8221;greedy&#8221; and being accused of writing the piece to &#8220;get famous.&#8221;  On the other hand, others have gone so far as to make veiled threats against her and resort to misogyny, calling her a &#8221;whore,&#8221; a &#8220;prostitute,&#8221; and a  &#8220;fking lib.&#8221;</p>
<p style="text-align: justify;">Some of the crudest comments come from a man named JB Handley. Handley is the founder of the anti-vaccine group Generation Rescue, &#8220;Jenny McCarthy&#8217;s autism research and treatment advocacy organization.&#8221;  Handley is famous for his vitriol against anybody who disagrees with him.  But in a rebuttal to Wallace even he reached new lows by playing the misogyny card.  He sent Wallace an essay he wrote called &#8220;Paul Offit Rapes (intellectually) Amy Wallace and Wired Magazine. &#8221; In the article, Handley takes the ugly metaphor further, implying that Paul Offit, a pediatric infectious disease doctor in Philadelphia who developed the Rotavirus vaccine and the author of a 2008 book exposing the anti-vaccine movement, slipped her a date rape drug.  &#8220;The roofie cocktails at Paul Offit&#8217;s house must be damn good,&#8221; he wrote.</p>
<p style="text-align: justify;">While Handley later omitted his comments from his essay (posted at Age of Autism&#8211;another anti-vaccine group), his handiwork is an ugly, disturbing case study in how anti-vaccinationists think and behave.  Whether it&#8217;s Jenny McCarthy yelling expletives on Larry King Live at the President of the American Academy of Pediatrics, or the threats on Paul Offit&#8217;s life that required him to need a security detail, there is a pattern of behavior that is at best, irrational and at worst extremist.   Whether or not you believe vaccines cause autism, you shouldn&#8217;t tolerate it.</p>
]]></content:encoded>
			<wfw:commentRss>http://thefastertimes.com/medicineandsociety/2009/10/30/the-anti-vaccine-movements-nasty-behavior/feed/</wfw:commentRss>
		</item>
		<item>
		<title>Why Real Health Care Reform Requires Good Doctors</title>
		<link>http://thefastertimes.com/medicineandsociety/2009/10/05/health-reform-should-be-about-more-than-money/</link>
		<comments>http://thefastertimes.com/medicineandsociety/2009/10/05/health-reform-should-be-about-more-than-money/#comments</comments>
		<pubDate>Mon, 05 Oct 2009 21:15:58 +0000</pubDate>
		<dc:creator>Rahul K. Parikh, MD</dc:creator>
		
		<category><![CDATA[Uncategorized]]></category>

		<category><![CDATA[health reform]]></category>

		<category><![CDATA[medicine and society]]></category>

		<category><![CDATA[rahul k. parikh]]></category>

		<guid isPermaLink="false">http://thefastertimes.com/medicineandsociety/?p=39</guid>
		<description><![CDATA[There is plenty to criticize in our bungling trek toward health reform.  Leaders on the right, left and at 1600 Pennsylvania Avenue  have sidestepped the crucial conversation of controlling the cost of care, in favor of partisan rhetoric about &#8220;death panels&#8221; and  &#8220;rationing care.&#8221;  Worse, the entire focus of reform has centered on spending billions [...]]]></description>
			<content:encoded><![CDATA[<p>There is plenty to criticize in our bungling trek toward health reform.  Leaders on the right, left and at 1600 Pennsylvania Avenue  have sidestepped the crucial conversation of controlling the cost of care, in favor of partisan rhetoric about &#8220;death panels&#8221; and  &#8220;rationing care.&#8221;  Worse, the entire focus of reform has centered on spending billions of dollars on technology solutions that will only make marginal changes in the cost and quality of care Americans get.</p>
<p>I want to refocus the debate on what matters most: relationships.  Let&#8217;s reinvest in the sitting down with, listening to, empathizing with and touching patients.</p>
<p>America has the most advanced healthcare system in the world. But in our haste to research, develop and invest in high-tech medicine, we have lost sight of the very basics of good doctoring. The first things we learn in medical school are: ask, listen and touch. Doctors do not do enough of this any more.</p>
<p>As has been made painfully clear, most doctors are rewarded for doing all manner of procedures.  This is true from the earliest moments of our career . As a resident, even when faced with the most basic medical problems,  I was grilled by my attending when I didn&#8217;t order the full battery of tests, or contact all the specialists available to consult on a patient. Thus, over-testing and over-treating becomes a knee-jerk response from the get go.</p>
<p>This is how doctors practice medicine today. Some of us do it this way because it&#8217;s how we get paid. Some of us refer our patients to specialists because we don&#8217;t have time to sit down with them ourselves. Some of us rely on tests and procedures because we&#8217;re fearful of malpractice lawsuits. And most of us have just lost sight of the most powerful tools in the doctor&#8217;s arsenal: our hands and our minds.</p>
<p>I&#8217;ll illustrate this with an example. Once while still a medical student, author Dr. Sandeep Jauhar evaluated a man with chest pain whose lab tests and EKG suggested he was having a heart attack. The patient was admitted to the ICU. Hours later, the patient was in severe pain and his blood pressure had dropped. The resident in charge ordered another EKG and prepared to intubate and place a central line in the patient.</p>
<p>In the midst of this, Jauhar took the patient&#8217;s blood pressure. For reasons then unclear to him, the resident instructed Jauhar to repeat the exercise &#8212; on the patient&#8217;s <em>other arm</em>. Jauhar tried, but above the din of beeping monitors and barking doctors, he couldn&#8217;t hear the pulsing sounds through his stethoscope. Jauhar &#8220;shrugged and let it go.&#8221;</p>
<p>Sometime in the night, the patient underwent a CT scan. The next morning Jauhar learned his patient hadn&#8217;t suffered a heart attack, after all. Instead, it was an aortic dissection - a tear in the wall of his aorta, leading to severe internal bleeding. Worse, with the time lost to the misdiagnosis, the dissection was now inoperable. The patient died later that day.</p>
<p>I use this example because the diagnosis ultimately confirmed by a $1,000 high-tech CT scan would have been evident from the low-tech hands-on procedure Jauhar  shrugged-off. A discrepancy in blood pressures between the right and left arm is a classic indicator of aortic dissection, and easily distinguishes the condition from a heart attack.</p>
<p>Consider that a blood pressure cuff costs just a few dollars, compared with the hundreds of thousands of dollars in sophisticated ICU and ER equipment that the medical team employed trying to solve the riddle of the patient&#8217;s condition. These same high tech tests and procedures also led the medical team down the wrong path. So much for the certainty we believe technology gives us.</p>
<p>If Jauhar had employed the basics of physical exam might the patient have lived? Possibly. In my own recent experience, I saw a young boy whose mother told me he seemed to be clumsier than other children his age. She had mentioned this to previous doctors, as well. When I examined him, I noted very brisk reflexes and an unusual flapping motion in his feet. This is called <em>ankle clonus</em>. I referred the mother to a pediatric neurologist. I learned shortly thereafter that her son wasn&#8217;t just clumsy. He has cerebral palsy. This is a diagnosis that must be made clinically; oftentimes an MRI or a CT scan cannot detect CP because there are no discrete visible findings. The happy ending is that physical and occupational therapy can ameliorate the boy&#8217;s symptoms<em>.</em></p>
<p>My point is that not all of the system&#8217;s ills can be solved with high technology - nor should they be. If you believe that reforming health care is essential for our country&#8217;s future - and if you&#8217;re at all mindful of our fiscal state &#8212; then you&#8217;ve got to be open to other strategies besides throwing billions of dollars at the problem.</p>
<p>We can start by leveraging the basics. For doctors like me, this means re-learning value of the patient history and the head to toe physical exam. It means weaning ourselves off our dependence on technology, tests and procedures.</p>
<p>In a better system, doctors won&#8217;t be rewarded for doing <em>every</em>thing.  Instead, they will be rewarded for doing <em>the right</em> <em>things</em>. They&#8217;ll use their heads and hands to decide how to spend our healthcare dollars - and I can promise you they&#8217;ll spend less of them in the process.</p>
<p>This is how we could do it. This is how we should do it. Simply by re-prioritizing medicine&#8217;s hands-on basics we can make great strides toward improving healthcare, without spending a dime on more technology.</p>
]]></content:encoded>
			<wfw:commentRss>http://thefastertimes.com/medicineandsociety/2009/10/05/health-reform-should-be-about-more-than-money/feed/</wfw:commentRss>
		</item>
		<item>
		<title>The Death of Fred Holliday and the Art of Health Care Reform</title>
		<link>http://thefastertimes.com/medicineandsociety/2009/09/24/the-art-of-health-reform/</link>
		<comments>http://thefastertimes.com/medicineandsociety/2009/09/24/the-art-of-health-reform/#comments</comments>
		<pubDate>Thu, 24 Sep 2009 22:14:10 +0000</pubDate>
		<dc:creator>Rahul K. Parikh, MD</dc:creator>
		
		<category><![CDATA[Uncategorized]]></category>

		<category><![CDATA[73 Cents]]></category>

		<category><![CDATA[fred holliday]]></category>

		<category><![CDATA[health care]]></category>

		<category><![CDATA[health care reform]]></category>

		<category><![CDATA[rahul k. parikh]]></category>

		<category><![CDATA[regina holliday]]></category>

		<guid isPermaLink="false">http://thefastertimes.com/medicineandsociety/?p=9</guid>
		<description><![CDATA[

If you want to get insights into the problems of our health care system, you should certainly listen to policy makers like Peter Orzag, browse economist Uwe Rhinehardt&#8217;s blog, or read Atul Gawande&#8217;s recent article in the New Yorker.
But you should also look at a mural by Washington DC resident Regina Holliday. Holliday is a [...]]]></description>
			<content:encoded><![CDATA[<p style="text-align: center">
<p style="text-align: justify"><img class="size-full wp-image-19 aligncenter" src="http://thefastertimes.com/medicineandsociety/files/2009/09/3844868025_bd64b606ed.jpg" alt="73 Cents Mural - Nurse turned away from the patient" width="500" height="375" title="The Death of Fred Holliday and the Art of Health Care Reform" /></p>
<p style="text-align: justify">If you want to get insights into the problems of our health care system, you should certainly listen to policy makers like Peter Orzag, browse economist Uwe Rhinehardt&#8217;s blog, or read Atul Gawande&#8217;s recent <a href="http://www.newyorker.com/reporting/2009/06/01/090601fa_fact_gawande" target="_blank">article </a>in the New Yorker.</p>
<p style="text-align: justify">But you should also look at a mural by Washington DC resident Regina Holliday. Holliday is a 37-year old mother of two and an art teacher. Last summer, her husband, Fred, died from kidney cancer at the age of 39. The Hollidays&#8217; experience is a case study in the ugliest, most festering problems of American health care. To share that horror story and to advocate for change, she began painting a portrait of a health care system that is fragmented and insensitive. It is a system where caregivers like Regina have to unfairly shoulder many bureaucratic burdens and one that needs to treat people better than the way it did her husband.</p>
<p style="text-align: justify">
<p style="text-align: justify"><strong>The Death of Fred Holliday:</strong></p>
<p style="text-align: justify">Regina stated her story by telling me about what happened to her husband.  Fred Holliday developed the early symptoms of his disease-fatigue, weight loss and occasional blood in his urine-before he had health insurance. In late 2008, his insurance kicked in after he got a job at American University teaching film studies. Last January, he developed low back pain. He went to see his doctor multiple times. Each time, she prescribed pain medication, but his pain worsened. Regina wondered: if Fred just had muscle pain, then why the night sweats? Why the blood tinged urine? Why didn&#8217;t his clothes fit him anymore? Still, Fred&#8217;s doctor didn&#8217;t reconsider her diagnosis and treatment.</p>
<p style="text-align: justify">His pain worsened. In March, Regina demanded more. Fred&#8217;s doctor ordered an MRI of his back. Three days later, they got a call telling them that he had &#8220;shadowing over his kidneys.&#8221; What that meant wasn&#8217;t entirely clear, but the next thing Fred and Regina knew, they were in the office of a Maryland oncologist, who admitted them to Holy Cross Hospital in Silver Spring for further tests.</p>
<p style="text-align: justify">On Friday, March 27 around 11 am, Regina was at work when Fred called. He was crying. &#8220;I think the doctor just told me I have cancer,&#8221; he managed to tell her.</p>
<p style="text-align: justify">What exactly did the doctor say? Fred remembered being told that he had a growth on his kidneys. Regina rushed into see the doctor, but he had left town for the weekend. They had to wait until the next day before another doctor (not an oncologist) tried to clarify his diagnosis: it looked like he had stage IV metastatic renal cell carcinoma. That jumble of words didn&#8217;t make any sense. Regina went onto the Internet. Wikipedia turned out to be more helpful than Fred&#8217;s doctors.</p>
<p style="text-align: justify">When their oncologist returned, he was curt and often distracted by his cell phone. He didn&#8217;t like Regina&#8217;s detailed questions, telling Fred that, &#8220;If Miss type-A personality wants me to answer her questions, she can come to my office hours.&#8221;</p>
<p style="text-align: justify">In retrospect, Regina believes that if Fred&#8217;s doctor had been clear about his prognosis from the beginning, he may have made the decision to stop fighting sooner. Instead, he informed him of how he could fight: surgeries, radiation, and chemotherapy. So he decided he needed more advanced care than what Holy Cross could provide.</p>
<p style="text-align: justify">Patient transfers between hospitals are normally the responsibility of doctors who work there. Holy Cross doctors, however, told her they had not been able to find another center willing to accept him. So Regina contacted her own internist, who sat on the board of directors at Suburban Hospital in Bethesda. After hearing Fred&#8217;s story, he pulled strings and arranged a transfer.</p>
<p style="text-align: justify">The Hollidays arrived at Suburban four weeks after Fred&#8217;s diagnosis. The first thing they learned was that he needed surgery to repair a broken hip-which happened after an orderly at Holy Cross bumped him into a wall while he was moving Fred on a gurney. Fred had been complaining of severe hip pain for two weeks, but nobody at Holy Cross had followed up on it. All it would have taken was the x-ray he got when he came to Suburban.</p>
<p style="text-align: justify">After surgery, his new oncologist ordered a chemotherapy drug called Sutent. While his health insurer approved the drug, Fred&#8217;s doctor told Regina that  the pharmacy refused to order it. At $40,000 for a 28 day supply, it was too expensive. &#8220;Sometimes this happens,&#8221; Fred&#8217;s doctor told her. So Regina had the drug mailed home, picked it up, tucked it safely into a fanny pack, and dispensed a dose to her husband each day.</p>
<p style="text-align: justify">Fred&#8217;s cancer advanced. He still couldn&#8217;t walk. He had become incontinent. The doctors decided to transfer him to a rehabilitation center with the goal of getting him to walk again. Once he was there, Regina&#8217;s duties as his caregiver intensified. She learned where the center&#8217;s storage closets were so she could collect fresh sheets and change them herself. She emptied his trash, and changed and disposed of his bedpans.</p>
<p style="text-align: justify">While he was in the hospital, Fred required blood transfusions every 10-14 days. Regina knew when he needed them because he would begin to get very tired, eat, move, and talk less. One afternoon, this is just what happened. At Surburban Hospital, it was easy to ask the nurse to get a blood test to know just how low his counts were. In the rehab center, they only did blood tests once every morning, no exceptions. So Fred suffered until morning came and his test confirmed what he and Regina knew the day before.</p>
<p style="text-align: justify">Fred would have to be re-hospitalized. The nearest one was, literally, across the parking lot from where he was. But rules and regulations prevented an employee from wheeling him over on a gurney. So Regina picked up the phone and arranged for an ambulance to take him across that parking lot. To accomplish this, she had to beg the rehab staff there to provide her with the proper medical records so the hospital would take Fred.</p>
<p style="text-align: justify">Fred continued to deteriorate. It quickly became a question of how much longer to fight. On May 19th, he was moved to hospice care to get his pain under control and on June 11th, he went home. On June 17th, less than three months after he was diagnosed with cancer, Fred Holliday died at home. Ironically, this was the same day that the United States Senate began debating health care reform.</p>
<p style="text-align: justify"><strong>Turn onto Connecticut Ave, Not Pennsylvania Ave</strong></p>
<p style="text-align: justify">These days you&#8217;ll find Regina Holliday on NW Connecticut Ave, painting her mural on the side of a gas station across from a CVS Pharmacy and near Politics and Prose bookstore. It&#8217;s called 73 Cents, named after the price patients have to pay to obtain copies of their medical records&#8211;$0.73 per page.</p>
<p style="text-align: justify">My colleague, Dr. Ted Eytan, recently took some photos of 73 Cents and posted them on <a href="http://www.flickr.com/photos/taedc/3844866717/in/set-72157622110226842/">Flickr</a>. At the center of photo is Fred Holliday lying sick-a note in his hand that&#8217;s telling Regina to &#8220;go after them&#8221; when he was at Holy Cross, after doctors wanted to send him home.</p>
<p style="text-align: justify">In front of Fred is Regina. She has two faces: the bright one of the caring, loving wife juxtaposed against the ashen one of the exhausted, frantic caregiver. She is secretly grabbing medical records from the nurse standing at his bedside. That nurse is looking at a blank computer screen, symbolic of a closed information loop of each hospital, which prevents doctors from sharing information freely. In contrast, a computer behind Fred in another room is being used by a nurse not to provide care, but rather to surf a social networking site, like Facebook.</p>
<p style="text-align: justify">In the far right corner of the mural sits a family friend, the one visitor who came to see Fred. The extra space between figures in the painting is something Holliday did on purpose-distance is a medical motif, be it strict visiting hours for family or the masks, gloves and gowns providers to prevent infections. Central to that theme is Fred&#8217;s doctor, his first oncologist, who keeps physical distance as he stands near the foot, and not the head of the bed, and that cell phone glued to his ear. His cold countenance-which nurses who work with him tell Regina she got just right-captures is emotional distance as well.</p>
<p style="text-align: justify">Symbols abound in the picture-one that stands out is the little girl dressed in the Stars and Stripes holding the caduceus staff. Holliday told me that she represents the status quo and the fear of change-exemplified in the real work by angry town hall meetings and anti-reform rallies that demand we protect Medicare, yet rail against a government takeover of medicine.</p>
<p style="text-align: justify">73 Cents is compelling advocacy, the exact opposite of what we&#8217;ve seen from our leaders over on Pennsylvania Ave. Regina Holliday isn&#8217;t sure whether her story and her mural will move the rudders in our National Debate over health care. She told me a few people have screamed at her over her art. She&#8217;s also had many fans, including Howard Dean, who reportedly came over and admired it. Regina&#8217;s work has also persuaded a few angry but more civil folks opposed to reform to look, think and chat with her. An eye-opening but civil dialogue about health care-now there&#8217;s an accomplishment Regina Holliday should get credit for.</p>
<h3 style="text-align: justify"><span style="color: #ff0000">Bonus Read:</span> <a href="http://thefastertimes.com/healthcare/2009/09/22/why-i-care-about-health-care/">Why I Care About Health Car</a>e</h3>
<p style="text-align: justify"> </p>
]]></content:encoded>
			<wfw:commentRss>http://thefastertimes.com/medicineandsociety/2009/09/24/the-art-of-health-reform/feed/</wfw:commentRss>
		</item>
	</channel>
</rss>
